Life was perfectly imperfect for Jamie Berry. She had been with her husband for 24 years and they had a beautiful 7 year old daughter. A fun-filled life at home with their 4 dogs, or loving the country-life on the ranch. The Berry’s work hard and play hard. The Berry's love family, friends and LIFE.
Life was wonderful...until October 2019, when Jamie noticed she would lose her balance easily and that she was unable to take one step in ANY shoe with a heel. Over the next few months, Jamie started limping. At first it was slight, but by February 2020, the limp was prominent. Jamie limped for 5 months before seeing a doctor. This is a mistake that she regrets, because with ALS, every minute counts.
That limp lead to the July 2020 diagnosis that nobody wants to hear,
"You have ALS. You have 2-5 years to die."
Instead of accepting death as via ALS as her fate, Jamie chose to fight. This page is all about Jamie and her relentless advocacy to #EndALS
Please sign this petition, to help Jamie gain access to life saving therapies: https://iamals.org/action/brainstorm-fda-petition/
You can help make a change in the lives of thousands of people suffering from this terrible fatal disease.
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